"I might have had a tough break, but I have an awful lot to live for." Lou Gehrig

New Update May 11, 2009
re: My Nepsis Stem Cell Treatment

Many of you have inquired as to how I am doing. Before I address this let me share some good news: A number of sporadic ALS patients have been treated by Dr. Ramirez and his medical team since my last update. Most all have shown significant improvements. I, on-the-other-hand had a minor setback, as my most recent self-administered tests indicates. “What is the culprit behind my decline,” you ask? Well, approximately six weeks or so ago I let one of my local docs talk me into doing a course of Baclofen therapy to reduce some bothersome muscular rigidity I was having in my lower legs. Unfortunately I had an adverse reaction to the Baclofen, after which virtually several of the gains I made after my stem cell therapy were turned on their head. The scientists and doctors who are a part of the Nepsis Institute-Ramirez stem cell program are now hard at work helping me get back on track. Most likely I will undergo a more advanced version of my original stem cell treatment sometime during the summer or wait for the iPS (induced Pluripotent Stem Cell) line to become available.
Thanks to all of you for your overwhelming support.

This is an update in graphic form to show my improvements since the Treatment on February 26th, the one month time period, and the bi-weekly addition since the original benchmark was set.

Physical Fitness Test
Function	Pre-Trtmt 2/23/09	Post-Trtmt 3/11/09	Post-Trtmt 3/26/09	4 / 9 / 09	5 / 11 / 09
Right arm fully extended out in front of me.	Not able to do	28 seconds	35 seconds	38 seconds	30 seconds
Left arm fully extended out in front of me	4 seconds	30 seconds	39 seconds	40 seconds	19 seconds
Both arms fully extended out in front of me.	Not able to do	27 seconds	33 seconds	not tested	no test
Right arm fully extended above my head	3 seconds	32 seconds	38 seconds	45 seconds	50 seconds
Left arm fully extended above my head	5 seconds	31 seconds	42 seconds	47 seconds	33 seconds
Both arm fully extended above my head	Not able to do	29 seconds	35 seconds	no test	no test
Right arm curls with 2.5 lb	Not able to do	Not able to do	not able, but stronger	1 very difficult	not able
left arm curls with 2.5 lb	Not able to do	3.5 reps	11.5 reps	18 reps	14 reps
Towel dry my hair	Not able to do	Able to do	easier	little easier	little harder
Put on ankle socks	Not able to do	Able to do	easier	same	same
Put on shirts	Not able to do	Able to do (cannot button)	easier	same	same
Left ring finger downward strength	No strength	able to push buttons downward	same	worse	not able
Walking	Very difficult, but possible	Much easier (legs no longer lock with each step)	much easier	easier, smoother, quicker	little harder,knees locking occasionally
Raising bottle of water to mouth	Not able to do	Able to do, but difficult	easier	little easier	little harder
Feeding myself	Difficult - required help	Easier, no longer require help	easier	same	same
Grabbing items utilizing opposable thumbs	Not able to do	Extremely difficult	easier	little easier

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