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New Update June 11, 2009
re: My Nepsis Stem Cell Treatment
Greetings to All Who Are Reading This Latest Update,
I have received numerous e-mails from people all around the world thanking me for providing information and hope through my website. Most of the e-mails I receive generally have the same questions or concerns. One recurring question is “How are you doing now?” My reply is simple: My condition is much better now than before I did the bone marrow derived stem and precursor cell treatment. However, I am currently at about 80% of my peak post-treatment. It appears to have plateaued at this point in time -- with the exception of my wrists which continue to slowly decline in function. Please keep in mind the stem & precursor cell treatment I underwent in February was merely designed to slow the progression of ALS. The doctors told me upfront that if I was fortunate I might see improvements in terms of my motor functions. Keep in mind that I was the first ALS person treated with this particular method and all eyes were on me to see what affects the treatment would have. Thankfully, the outcome has been uniformly positive.
Since my treatment I have had numerous conversations with the doctors and scientists at Nepsis Institute and they tell me that once they have sufficient funds to purchase highly sophisticated lab equipment and get this equipment on-site and up and running, they will be able to generate induced pluripotent stem cells (iPS) from a small sample of a patient's liver cells and then ultra-rapidly expand and transform these into specific cells that will benefit ALS (Nepsis licenses a patent pending approach to creating iPS using recombinant proteins and not viruses). The primary goal of the scientists involved is to create motor neurons from these iPS cells for transplant into the CNS of ALS patients -- followed by coaxing them to attach to muscles and such. If and when they achieve this goal, it may very well be possible to replace defective or dying motor neurons fast enough to outstrip the disease process and by so doing make ALS as manageable a disease as diabetes (Just do your treatment now and then as needed and stay well).
SPECIAL NOTE: Here is a link to a special self-administered test that will allow ALS patients to gage where they stand in terms of motor function: http://www.outcomes-umassmed.org/ALS/alsscale.cfm. All they need do is take the test at regular intervals, record or chart their scores, and they’ll be able to see if they are holding their own or declining.
Take Care & God Bless!
Jerry Porter
Interested? Nepsis Institute Patient Enrollment Form
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